Our Impact: Brewing a Difference for Rare Disease Families

Our shop carries a name that means everything to our family. Sarah Lilly's is named in memory of Sarah Lilly, a baby girl who was part of our lives for only a short time and who changed us forever.

Sarah Lilly's story

Sarah Lilly was diagnosed in utero with Trisomy 18. She lived for 36 hours and weighed 3.5 pounds. She never cried, but she gazed at her family, and we hold on to those moments. When it was time to say goodbye, she was sent off with a fanfare of bubbles.

Since then, a bubble has been a sign from her. When one drifts by at just the right moment, we smile and think of her.

Why we give

We wanted to build something that carries her name forward and does some good. A portion of every sale at Sarah Lilly's is donated to the National Organization for Rare Disorders, known as NORD.

What NORD does

NORD researches chromosome disorders and other rare diseases in children, and it supports the families who are living with them. Families facing a rare diagnosis often feel alone, and organizations like NORD work to change that.

A portion of every sale

When you buy from us, a portion of the proceeds goes to NORD. Every order counts, whether it is a single tin of tea or a gift for a friend.

How you can help

• Shop: browse our freeze dried teas and candy. Each purchase supports our giving.
• Share: tell a friend or family member about Sarah Lilly's and the story behind it.
• Sign up: join our email list (it is opt-in, and you can leave at any time) to hear about new products and news from the shop.

Thank you

Thank you for being part of this with us. Every cup you steep helps keep Sarah Lilly's memory bright and supports families who need it. If you would like to share your own story or just say hello, you can reach us through our contact form or by phone or text at 701-721-7965.

Learn more about how we make and handle our products.